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Dystonia

Floorbed™

Andrew’s story

Andrew is a 42-year-old man with severe generalised dystonia, he experiences frequent spasms as a result. His spasms have been so severe on occasion that they have caused him to experience bed falls and have also frequently resulted in him hitting his head and arms on the wooden headboard, leading to a much disrupted sleep pattern and, as a result, exhaustion.

A standard profiling bed with side rails was considered to prevent him falling out of bed, however, this provision was not deemed suitable due to the risk of injury and entrapment. The provision and fitting of side rail bumpers was not deemed strong enough to prevent the risk of injury and entrapment due to his very strong, uncontrolled spasms.

During a recent hospital admission, Andrew had been provided with an ultra-low bed that has a minimum height of 9 cm. This reduced the risks to Andrew and so the OT looked at providing this in the community, however the cost exceeded £3,500.

Results

The FloorBed™ with a mattress platform height of just 7cm was significantly more cost effective and so a trial was arranged. Following the successful trial it was agreed that Andrew would benefit from provision of the FloorBed™ with head and foot board bumpers and side rails. A compatible safety mat was also provided – this mat matches the height of the bed and mattress at the lowest point.

The benefits of the FloorBed™:

  • The bed lowers almost flat to the floor for sleeping at night with a safety mat of the same height as the mattress for extra security.
  • The bed can be used at normal height for rest periods during the day with the soft, but firm, side rails raised for security, which cannot cause injury to the user.
  • The bed has profiling bed functions to adjust the back rest and knee break for change of position whether the bed is raised or lowered.
  • The bed has fitted smooth padded panels that completely cover the head and foot boards.

Feedback from Andrew:
Andrew states that he has been able to relax because he has no anxiety about falling out of bed and no fear of injuring himself during spasms. Andrew reports that he has been able to sleep for long periods of time (up to 5 hours), which he has been unable to do for the last 2 years. This has resulted in him being less exhausted during the day.